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Saturday, 21 October 2017

Fighting Stigma In Buterere

Thursday was my final meeting with women and men living with HIV in Buterere.
The objective was to empower ourselves as we face day by day the Stigma.

During the introduction everybody did share the story of how he or she did get HIV.I have to be honest their stories were very inspirering.Many men were with their wives so they would share  stories from the beginning of diagnose .
In Buterere site they have peer counselor "Abaremeshakiyago"
They help others to get to hospital for HIV test when they suspect that you are very sick.They counsel as well the new diagnose HIV positive Batwa.

These people were not aware of U=U  Undetectable =Untransmittable and their doctor never gave them the information.
They were relieved .One woman said that she has been carrying the fear for so long.
They both take medication from different places.The most location was Nouvelle Esperance of Buyenzi.
They like the idea of meeting once for while as a support group so then the new infected people who started medication could join and hear their experiences.

We talked about STIGMA in their community .One man told us how children used to stone him the time he had Aids.
But now since his medication did help he has changed. Other woman said that they used to point fingers to her "Look she has Sida (Aids)but at some point the Chief of Village did give order of whoever will do that again ,will be seriousely punished.

Most of them have old children , they told them very long time.Some of their kids help the mothers to remind  to take medication. It's a small step they have made by coming out from their children.
All 24 people went home happy to start such a support group and be updated on  information  U=U
I finished by ASSEJEBA (Association pour la Jeunesse Batwa)where I was honored ny receiving a Volunter Certificate for the work I have done for Batwa Community.
Together we are strong!
Peace,
Eliane

Friday, 20 October 2017

The Hills of Gahwazi

Tuesday with ASSEJEBA team went to visit the Batwa from Gahwazi 2 in Mpanda Commune ,Bubanza Province.
It's a place of Hills only,the car could not get us to the houses where Batwa live.
So we walked 6km climbing till on top.
I have never done it before.In Gihanga is plat like in Netherlands (Pays-Bas)where there is no single mountain.It was a great sport for me.

The welcome is dancing and singing from Youth choire and Vibrant women group.
Every time is very special for me!

My introduction is always the same. Asking what they know on HIV and Aids.
According to them HIV is a desease you get from cheating on your relationship. How to prevent HIV ,You can stop having sex.
I asked if they ever seen someone with HIV .Their ansuer was yes .The person with Aids has big head,thin arms and a skin infection (Zona)
So we talked many other ways of getting HIV ,the Prevention and treatement.
I reminded them of not ruling out the case of rape for women and girls an other way of high infection in our community.They agree with me.
Then I started sharing my HIV story.They were surprised when I showed my medications.It was a urge opening !
All the children and parents were listening careful and asked many questions regarding the HIV MYTH within Batwa community.
According to Batwa of Gahwazi2  a Mutwa has HIV when he can not produce the pot (Kubumba Inkono).
My story did change  how they vieuw a person who live with HIV.

The Chief of Batwa with emotions did explain the gratitude he had to be able to see me being open and give them education. He said in his words"I have heard from people who came once to talk about the prevention on HIV and Aids,I have got many informations but I have never seen in person someone with HIV open and share this inspiring story.We see she tell the truth ,she has shown us medication.We are lucky to have her here  Thank you Eliane for choosing the Batwa.We are convinced that Knowing your status is the basic for planing our future and development. (ITERAMBERE) God bless you"

We finished by distributing the Excices books to 193 children.
We left them with smile faces.

Peace,
Eliane

Sunday, 15 October 2017

Inspired by Hiv positive Batwa

Last friday I had an opportunity to meet Hiv positive women of Buterere. I have been there before for education on Hiv and Aids for all Batwa but this time I needed to meet women group.

It was a group of 14 women all hiv positive. They were from different ages. Young and Old. The oldest was 52 years.
We did share our stories and I gave information of UequalsU since we were talking about the problem related to  Stigma. I realized they can handle much more than I thought. We learned each others from many experience.
There a woman who inspired us by her  story
She lost 2 husband because of Aids ,her cousin who lived in village was rejected by all family because of His Hiv .He was left alone and died of Aids and has been eten by all dogs from the village. Meanwhile her uncle (the father of a boy eaten by dogs)went in Bujumbura city and get treatement. He decided to tell his family that he has Hiv after his own son's death.
This woman believes that she has Hiv because of her 2 husbands death.She think that her Hiv is hidden in bones.
We did support her  and asked her to trust her doctor.

About transmission mother to child.
I have learned from these wonderful mothers.I was never allowed to breastfeed my 2 boys to prevent the infection. After birth, I reived a pill to stop my breastmilk. I gave my babies powder milk since they were born. I wished many time to breastfeed them. Unfortunately I had no choice. I don't regret it but I wish I coud have got second opinion.

When I shared my experience ,the look of these women could show how pity they felt for me.
So I have asked them how come they breastfeed their babies .They explained that from the begining the baby get the mother milk from 0 till 6 month. ONLY milk and not water. The baby will take together with mother milk ,the antibiotics "Bactrim sirop" till 6 months. They don't get anything else.Mother will keep taking medication as normal amd baby will take till the last result if hiv test come out negative.After 6 months ,the baby can drink water and eat some fruit.

They explained the advantage of Bactrim Sirop. The baby can not get fast infection like grip, diarhée. I have seen those beautiful babies ,I felt a big joy and pride for those Mutwa positive women.

There were some mothers who went throught the same system of Bactrim Sirop and their kids are more than 10 years old.  They do so because they can not afford the powder milk and giving cowmilk for a new born does not work effectively with Hiv Medication for baby.

We were very happy to exchange and connect .I was glad to spend a day with them and I think positive new mothers in Nederland have something to learn too.
If I would give birth again ,I would definately breastfeed and enjoy such a good feeling of being a complete mother.
I am inspired by those Hiv positive women from Buterere.

Peace
Eliane

Thursday, 12 October 2017

The Artist of Murira

Today was great to see Children of Murira
With their parents smiling .
Last week I gave education on Hiv and Aids and Fight for stigma for People living with Hiv.

After realizing that chidren were responding positively I decided to organize a drawing competition to share all the educational messages via the draw. The theme was "Fight the stigma against people living with Hiv and Aids"
The best artist was to be rewarded and his art to be hanging on school wall.

They did work hard since some children were drawing seating on the floor.
In class were a lot of old and damaged chairs.I had an idea of repairing those one and let them be used as soon as possible.

Today was the D -day to give the price for the 5 winners of drawing competition.And give the 46chairs ready today for use but more will come the work is on progress.

People of Murira were blessed today because the Vice President came to distribute the rice to109 families. After he came to support me where I was giving all prices for the 5 winners.He congratulate me for giving a good example and sharing the Love with my Community. 

After came to me a little girl she said "Thank you for giving us the chairs ,I was very tired everyday seating on the floor"
With a great joy, I smiled!

Wednesday, 11 October 2017

The Empowerment .

Hello.
Last few days I have been visiting more Batwa Villages In Nyamwera ,Rugamba both in Muhanga Commune ,Province Kanyanza.And also in Mubarazi in Murambi commune ,Province Muramvya.
The welcome in singing and dancing always  boost my energy  and make me feel at home.

In every village , the Batwa have the same problem of poverty. They have no solide houses .when it rains ,they stand up the whole night. Their children don't go at school because they don't have school uniforms and shoes. They are forced to return home and miss out the school.

During Hiv education the Batwa thought that the Transmission is only via sex or sharing the sharp objects.The transmission mother to Child or blood transfusion were not known.
Some Batwa describe the Hiv person as someone with Big head , very skinny and Red rips .This is the great time where I use my story to educate them and it was an eye opener since they never seen a really Hiv positive person open about it. When I showed my medication it enforced the power of my message and they were more convinced that I am an Hiv positive woman!

We started talking about the Stigma and breaking the silence  and support the Hiv positive Batwa as one people ,as one communuty. They are ready to go for Hiv test to find out and start treatement.

I closed the visit by meeting in secret a group of 4 young positive Batwa men who stop going at school  very long time because of discrimination  And they interrapt the taking of their medication due to the reasons of being afraid ."Death is close"
We discussed  a lot and decided to start whatsup support group since one of them has a number it will be easy to keep in touch
I was so happy to see again the smile on their face. They went home empowered!

Sunday, 8 October 2017

The woman from Buyenzi.

Yesterday I visited Buyenzi at Ruvumera market in Bujumbura .It's place  to find the divercity. They sell and fix many things .People used to joke that even if a flight would be broken the wings ,it can be fixed  Buyenzi they have everything!

While walking around I meet the woman her name is Zainabu  .She was selling the ananas. She had a baby in her back and looked very energetic I asked the price and took the picture of ananas . She asked me if I am a tourist .I told her that I am in Burundi to educate Batwa on Hiv and Aids She asked why did i choose to do Hiv education.I explained that I have a good reasons to help the Batwa  people because they don't know what it is Hiv and Aids since I have Hiv for almost 15years

She looked at me surprised and she said"If you have it for so many years there is no way I could be afraid of death" you look healthy and Happy!

I shared with her my hiv story  she was motivated to hear that I have been able to give birth of healthy Hiv negative children. She agreed with me that the only way to find out is doing Hiv test and she promised to do Hiv test for her and her 4 children.
Unfortunately her phone was stolen few days ago I would have loved to keep in touch.

After saying goodbye I realized that I just finished to empower an other citizen of the World!

Peace
Eliane

Wednesday, 4 October 2017

The Children of Murira.

Today I went to give education on Hiv and Aids to children from Primary school MURIRA1 in Gihanga Commune.
It was great to see all the changes after many years. A lot of houses have been builded and new schools which were not there when I was young .
What chocked me is that some chidren are seating on the floor because the chairs are not enough or broken.It made me cry to see them in those  conditions.

I was welcomed by the Headmester and two teacher of 6th term primary school.
During introduction I told them that I am a native of Murira and they very curious to Know what brought me back there.

I started by asking  different questions relating on what is Hiv , Infection and prevention. They responden very well and have  asked many questions . There was a very good interraction betwen class.
We learn about stigma around  HIV and Aids , the important of testing.
We close our class by making drowing competition for the Anti stigma.

While I walked outside I saw this boy on foto who has been listening all my talking through the Window.He asked me ." Hiv can not take my talent of playing my favoriet football right?"I said not at all!" He thanked me again for being honest with them in class.
I have a good souvenir from this Burundian Hand made ball from my village.

Peace
Eliane

Monday, 2 October 2017

The Smile of Batwa

Dear all
Today was my first trip to Batwa of Buterere.Together with Batwa Local organisation we were very welcome by the Big chief NGenzi . The women and chidren were all singing and dancing .   I join the dance to get familiar with them .

The Batwa people are always happy. I
gave education on HIV  and Aids by using my Hiv life story. They were very touched and convinced. There was a woman Mariziya she gave a speach about how happy they are to get such knoledge . "People will bring food to us but this is more than food" we are having education ,  The best way to know that you are Infected  is by doing hiv test and get treated at hospital.

They made immediately a new song using the message I just finish to give during the Hiv education.
Before I say goodbye , I shake my hand with this boy on picture and He told me "I will stay healthy and my dream is that one day I will be a Doctor "
The Batwa children have dream too!

Peace
Eliane

Sunday, 1 October 2017

Hello Burundi

Dear all
Hi .I finally reach safe in my home country Burundi. It went easy on Airport than I thought. I am now resting as I have flown almost 12 hours.

Where I am staying in city has such  beautiful banana tree. When I saw it ,it reminded me of my youth when I used  to help my mother to collect the bananas fruits and made the banana bier from it.
It has a very tasty juice which i liked to take at school as my 10h o' clock drink.

And I am sure when I will go to my village I will sure have some banana bier (Urwarwa)
This place brings back defintely my sweet memory!

We keep in touch!
Peace,
Eliane

Thursday, 28 September 2017

Green Light

Dear all
I am very excited to share the good news after a week of stress. I finally got  the Green Light, I can travel to Bujumbura this weekend! I did not get the visa but instead I got a travel document signed by PAFE(Immigration)Burundi.

The Batwa Local Organisation that invited me for Batwa Education worked really hard to arrange this for me up, and they managed to arrange this today. With this piece of paper I can get visa at Bujumbura Airport. A big thank you to my friends in Burundi!

Well , I am so glad I don't have to reschedule my program in Bujumbura.I am writing now while I am travelling to LOndon for a Hiv documentary.Tomorrow evening I will be back, pack my bags and then leave for Burundi in Saturday. So exciting.

I will keep you posted as promised. Have a great evening!

Peace,
Eliane

Friday, 22 September 2017

A day of Confusion

My day started very beautifully. I was told that my Burundi visa was ready and that i could fetch it at the Embassy in the Hague. So I woke up earlier to make it on time since they open from 9h till 12h. I had my day well planned to make sure I would be back home for a conference call from 13h.

When I entered the room, the receptionist, that I spoke on the phone earlier this week and told me my visa was ready, was very confident to find my passport quickly. She started searching my passport and sowly I saw her eyes widening, focusing on so many list like she never did before. I was very patient and confident that i would return with my visa.

After many long minutes, looking at all those lists,  she had to confess to me that my visa was not yet ready.  How did you manage to confirm my visa twice on phone  and even give me the right time to fetch it? She said "I am sorry, I confused you with someone else". I was speechless for a moment. I don't have the same family names with that person, not even the same name and age. Yeah being angry was no options because I would close all doors!

Before i caught my train I wanted to relax and spoil myself with a good Latte Macciato from Starbucks. Guess what happened? they also managed to confuse my name , Eliane became Eliani. What a confusing day of my life!

So now I am home without a visa , my last chance is next Wednesday. I will keep you informed, for now we keep our fingers crossed to have my visa in time. Never give up hope...

Have a good weekend.
Regards,
Eliane

Sunday, 10 September 2017

Always Myself

Hello everyone.
While waiting for the news on my visa, I choose to share a little bit of my life at begining of my hiv. I was just looking at my old album foto and when i saw this picture, it reminded me of the first week of my hiv treatement. I was diagnosed in Luanda, Angola, with Bad news that i was going to die and not even allowed to have children.The Doctor in Luanda sent me home without prescription so i could not buy any medication anywhere. My husband was my guardian Angel he supported me and took me in Pretoria in South Africa to see a doctor .

I came back to Malange in Angola, where my husband was going for work. I have to start over a new life in making new contacts and try to socialize with people around me. It was hard to find people who speak French English or Swahili.Forget about Kirundi there was no chance!
I decided to start my medication after the 2004 new year party. It was not easy , i did not want to smell garlic, or chicken. I did want to smell or drink a single drop of beer for at least 4 months.

But after my first week of treatement, we decided to go for a pick nick at the Kangandala Waterfalls with a small family of my husband colleague. It was a beautiful place to be. I totally forgot even the whole hiv story. It was amazing to be in the nature. We had a great day we took beautiful foto which I am sharing with you. I tried to see the difference between this foto and the one taken last week with my friends in Groningen. I realize i am stil the same happy, energetic happy girl. My conclusion is hiv does not define me!I am who I am and I will always be the same.


Have a great week.
Regards,
Eliane.

Wednesday, 23 August 2017

Burundi Visa

Hello everyone,

Today I went  to Burundian Embassy in Den Haag to apply for Visa. It was very exciting morning  to see that I have collected all paper work required for visa.                                                                                                                                                                                                                    
After I sent my boys to school, I took a train from Schothorst to Den Haag. In Utrecht a woman came in and sat next to me. The sun was shining so I had my beautiful funny sunglass in the shape of 2 lovey hearts. She greeted me and she said  ‘wow you have beautiful special sunglass, I have never seen those. I said thank you. There is so much hate in this World we need sometimes something to remind us that love could be a solution of  many problems. She looked at me, surprised of my answer and she said that I am correct! We continued our conversation. She was taking off from her work going to pick up her 22 years old girl in Rotterdam and both would go to France for a short holiday. She asked me if I was going to work or still on holidays. I told her I was going to apply for visa for Burundi. I explained about the work I will be going to do. When I told my reasons that I am also Hiv positive. She was again surprise, I look too beautiful and young to have hiv.I explained that Hiv does not choose people based on age or race. I told her that my life has been a gift to some people because I can use my story to encourage new Hiv diagnosed people. In Gouda we said goodbye and she thanked me for being honest and sharing such inspirational story.

I continued my way to Den Haag Centraal where I took a short bus ride to the Burundian Embassy. I was received very fast, it was less busy than I thought. When they put a stamp for receiving my application I was relieved. From now on, it is a matter of waiting between 2 and 3 weeks to receive my visa.

I feel like the days are flying like the wind! Thank you again for being with me on this journey.

Regards, Eliane

Monday, 21 August 2017

Kick off Burundi Batwa Campaign

Hello everyone,

I would like to thank you from the bottom of my heart for your contribution to Burundi Batwa Campaign. It is because of your donation I have now been able to buy the ticket. Now I am certain I will leave Netherlands 30th September evening and arrive in Bujumbura morning of 1st October.

I have been trying to find an easy way to communicate  with all of you without using Facebook. Some of you have Facebook account other one not. That is why I opened my personal blogger where you can read my stories and all updates on activities in Burundi.

I have heard in Burundi there frequent power cuts, and some places where I will go will not have internet. It will be easy to use my blog to tell how my days went. As soon I am back in town where is access to WiFi  I would then post online my blog.

I invite you to take a look at my blog and give me a feedback. Wish you a good week. God Bless you.

Regards,
Eliane Becks Nininahazwe

Fighting Hiv and Aids Stigma amongst the homeless,

Last week Thursday as the Face of Winter Youth migrant Ambassador with team at Fashion Outreach Amsterdam we hosted a charity pop-up store for the homeless and the less privileged at the World house Amsterdam. The World House is a center for information and counseling for people in the Netherlands living with few rights.
Since my boys are on school summer holidays they offered to joinme to help out in the Charity store. This took me back to when I was young and witnessed my mother helping other women to give birth under the trees of our garden in my village. Our house was build by the road leading to the only hospital we had in Gihanga commune about 4 km away. Some people would travel from Buramata, Murengeza, Nkuzamuhari, Gihungwe and Mitakataka going to Gihanga Hospital. Sometimes they will be so sick that they could not walk anymore and they lie under our tree and i saw my mother fed some of them with food and water and later sent someone with a bicycle to the hospital to call for an ambulance since the telecommunication during that time was rare. I grew up seeing my mother lending a helping hand to others and that shaped me to becoming the woman iam today.
When my boys offered me to join me for our Charity pop -up store for the homeless, it brought back memories of my youth, I felt it was important to stimulate the young ones  to do such good work in helping other people in need.
We packed out bags full of shoes, clothes ,neckless and bags. we traveled from Amersfoort Schothorst with Train in a scorching sun. Upon reaching Amsterdam Central we transited on a metro to our destination which was in Waterlooplein.It was still a beautiful weather. When we got to Waterlooplein we realized the Exit to the World House was under construction so we used another exit which took us 5 mins to arrive at our destination. The boys were still exciteduntil it started raining. We tried to protect  the bags from being wet because we did not want to give away wet clothing.
My boys started telling me why this mama?It could have waited a bit for us to get there because the homeless deserved to have dry clothes. I said let us pray.We took shelter under a house with a tiny sight of the roof, at some stage we thought the rain was getting less but it kept raining harder. The boys almost gave up, we were all wet but i urged to pray.We asked God to take away the rain as we were getting late. The man who was standing next to me looked at me in weird way as if i was some sort of crazy woman as i kept calling on God to help us. After a while the rain stoped, the man turned and said "Wow it worked"
My boys said Mom next time ask God earlier before we get wet. I laughed and said i thought it was small shower but it went on and on. But next time i will ask earlier or maybe next time no to rain at all.
When we got to World House we met another team from Fashion Outrech Amsterdam  and we set up our Charity store. It was great to see people happy, smiling and really appreciating our help.
I am an Hiv Positive activist so i used the opportunity to give education on Hiv and Aids and talked about Stigma around it by sharing my story. I started to ask them how would they tell if someone has Hiv or not? One guy started pretending that he did not hear me whilst I was using my microphone, I started making some sweet sound whispering in microphone and asked if anyone could hear me and the guy said yes he could hear me. Then I continue the topic.
This time it was very special because all my sons I gave birth to after i was diagnosed with Hiv were there and did help meto tell my story. It was the first time i told my story in the presence of my boys. Everyone gave us an applause when i introduced my first  and second child whom i gave birth to after I was diagnosed Hiv positive. It felt like we were a ''STIGMA FIGHTER TEAM". I could read some faces like i was telling their stories. I was happy i could share with these homeless because if  some of them would be Hiv positive then it only meant they are facing a double Stigma of being hiv positive and homeless.
I feel this group deserve to have education on Health , Hiv and Aids and Prevention. Everyone deserves equal right but we alrways forget some group of individuals.
On our way home Akira my third child said to me"Mom I am very proud of you and your work"and then said Rio my second child"You are the greatest mom in the entire World, you have a good heart to help the poor people" Akira said again "We will follow your step when we grow up." I thank them for the big help in carring bags, the patience for standing in rain and helping to tell my Hiv story. They told me that they are not  ashamed of me because  I am a supermom for them.
If my story could be your teacher then let me tell it over and over !
Let's fight together Hiv Stigma and educate people in order to promote Hiv testing  among  our community.
Have a great week
Eliane.